“Over 15 years ago, frustration with the way families with children and youth with special health care needs (CYSHCN) were served led to a new vision of the systems of care in our nation. Families and service providers were frustrated with the fragmentation of services, the frequent need for families to travel long distances to obtain needed help, and the lack of respect for families’ knowledge and needs. The vision that developed was for a system of care that is community based, comprehensive, and coordinated. This system must also recognize that the family is at the center of caring for a child with special needs and must respect the family’s culture and viewpoints.”
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